I had an appointment with the audiologist today and, while it wasn't what I hoped, it confirmed what I really already knew. I have had a significant drop. My last full audi exam was in '08, so here is how it compares (frequency: '08 result/today's result/amount of change, NMR = no measurable response):
Right ear:
250 Hz: 15 dB / 20 dB / -5
500 Hz: 15 dB / 20 dB / -5
1000 Hz: 20 dB / 40 dB / -20
2000 Hz: 55 dB / 70 dB / -15
4000 Hz: 80 dB / 110 dB / -30
6000 Hz: 75 dB / NMR / >-35
8000 Hz: 70 dB / NMR / >-40
Left ear:
250 Hz: 20 dB / 25 dB / -5
500 Hz: 25 dB / 30 dB / -10
1000 Hz: 45 dB / 50 dB / -10
2000 Hz: 55 dB / 65 dB / -10
4000 Hz: 85 dB / 110 dB / -25
6000 Hz: 100 dB / NMR / >-10*
8000 Hz: 100 dB / NMR / >-10*
*I only think these weren't any worse because they were so close to non-existent before.
So, this is the first time I have had a test where there were frequencies that were absolutely, totally gone. Before, they may have been jet-engine loud, but hey, there was still *something* there! I have known for a while that I wasn't hearing as well, but to see it confirmed in black and white is just hard. No, it's more than hard, IT SUCKS! (And I hate that word, my kids get in trouble for saying it so don't tell them Mommy used that word here, okay?)
I left the audi's office and went and browsed a bookstore for a while just to give myself time to absorb it. Thankfully, my mom had the kids so I had a rare few minutes alone, plus my cell phone battery had died, so I had a good excuse not to have to call and explain my results to anyone right away. It makes it more real when you tell someone else, you know.
We have new insurance that has coverage for hearing aids, which was one of the reasons I scheduled this appointment, to see if power aids might give me more benefit. The audi said he really didn't think they would help much more than what I was getting from the aids I had now, since I was getting fair amplification in the ranges where my hearing was still registering.
I asked about a CI and especially what he knew or thought about the new hybrids. The audi said it would be worth a consultation and suggested I call the clinic doing the trials for the hybrid CI. I am not sure I am quite ready to go that route yet, but I am closer than I was. It never hurts to gather information.
Mostly I am just tired. I am tired of being the one to make my hearing loss look 'easy', the one to make all the accomodations in communicating, the one putting forth all the effort. The audi told me those words I have heard many times that I now cringe at: "I don't 'look' like my loss". In other words, I cope really, really well for as significant as a loss as I have. It doesn't mean I hear any better, just that I have found ways to not let on to other people that I don't hear, and tonight that is not something I am proud of. Part of me just wants to leave my aids in a box and start being deaf so no one else will expect me to hear!
I am in the midst of a huge pity party and in a few days the world will be okay again, but tonight I am in mourning for all those dB's that I heard as recently as two years ago that now are no longer accessible to me, that sliver of sound between '08's slope and today's lines on a grid that means much more than just a mere pen mark. It's a slice of more consanants I won't hear, more meaning that will fly over my head, more requests for something to be repeated because I didn't quite catch that. I am mourning the connection to my loved ones, the accquaintances that might have become close friends and the people I haven't met yet that I may pass by because I don't want to trouble them with the effort it takes to communicate in my world, my not-quite-deaf-but-definitely far-from-hearing world. And today it just got a little farther...
Ushers ... a New Journey
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So it's been years since I've posted. Too many years. Aiden, my blue eyed
baby above, was doing great, everything was right on track. Until the day.
Unti...
4 years ago
6 comments:
I am so very sorry. I feel your pain. I have otosclerosis and after my last app't, I just sat in my SUV and cried a good cry.
I, too, put on a great facade. I have learned to read lips and gratefully my family speaks louder to me and will repeat things if I need them to.
I have found that I stay at home more now, because people think I am rude when I do not answer. Why is it so hard for me to say, "I'm sorry, I have severe hearing loss and can't hear what you are saying."
Hugs..
Cece
sorry your news wasn't good!
nothing I can say would make you feel any better. but I do want to say you have a beautiful family.
I met you when I took one of your classes in GASC - Chantilly a few years ago!
I'm sorry for your loss... literally. I can't imagine what it must be like because you know what you're missing, unlike a child who was born with a hearing loss.
What are the hybrids? I have heard that a hybrid means using a hearing aid in combination with a CI, but that they were years down the road.
Just bopped over here from TWTM--the prayer request thread. I've lived with several family members who are dealing with hearing loss. I'd just like to offer a (()) and a prayer. Sometimes our bodies make choices for us that we would never have chosen. The only thing I can think of that I can encourage you to do is not to be afraid to let people know what would make it easier for you (Speak louder? Or just slow our speech? Face you when we talk?)It takes practice on our part to learn--but we all benefit. It makes both your life and our lives richer as we learn to reach out to each other. Blessings on the journey. Jean
I just stumbled on your blog by accident, by way of the WTM first grade post. It made me cry. I hope you find comfort in your beautiful family and your faith at this time.
I'm a hard-of-hearing 24 year old mom with an 18 month old and another baby on the way. No hearing aids, though--I get along by a combination of lip reading and guesswork. My hearing loss isn't as advanced as yours yet, but I worry about the future. I worry that I'll miss my later children's first laughs, first words. I worry that one day I won't hear them calling when they need me. My little girl didn't inherit my ear problems, but I worry that another child of mine will, maybe the baby I'm carrying right now--and they will have to go through years of pain, followed by the world slowly going quiet around them.
I'm sorry.
This is Kerri from HLAA. Wow, I think we could write each other's feelings down! My hearing has stayed fairly stable for a while, but I have a feeling it's getting worse. I'm not brave enough to have it checked yet. And everyone is always surprised at the fact that I have a loss. I'm also tempted sometimes to leave the aids at home and let people deal with the fact that I can't hear them. I'm glad you had a few minutes on your own to absorb everything.
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